tag:blogger.com,1999:blog-39904063017365834402024-03-05T21:01:32.458-06:00GIST ChicagoSupport for people living with GastroIntestinal Stromal Tumor (GIST) in the Chicago AreaJim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-3990406301736583440.post-35358046484067242022022-01-05T20:54:00.008-06:002024-01-31T23:58:48.088-06:002024 Saturday Meeting ScheduleOur tentative schedule for 2024 will be for in-person meetings (which may move to Zoom depending on COVID/Flu/RSV status). Our in-person meeting will be at The Wellness House in Hinsdale. Saturday meeting dates for 2024 are:
February 3, 2024
May 18, 2024, Chicago GIST Day of Learning at Lurie Cancer Center
September 7, 2024
Meetings
are generally informal. The typical Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-83847292211048454372015-11-12T17:55:00.002-06:002015-11-12T17:55:56.585-06:00Webcast Thur. Jan. 28, 2016: Living with Gastrointestinal Stromal Tumors (GIST)CancerCare is offering a workshop via either an on-line webcast or as a listen-in phone call with Doctors George Demetri and Mike Heinrich titled " Living with Gastrointestinal Stromal Tumors (GIST)" on Thursday, January 28, 2016,
1:30 – 2:30 pm, Eastern Time.
Both Drs. Demetri and Heinrich are renowned GIST researchers as well as oncologists who treat a wide range of GIST patients.&Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-75382745081376420372015-09-09T14:08:00.000-05:002016-01-24T17:58:12.183-06:00Chicago Area GIST Patients 2016 Meeting Schedule<!--[if gte mso 9]>
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<![endif]-->Our Chicago Area GIST Patients regular meeting schedule pattern has been to meet on Pro Bowl Sunday in January, and the first
Sundays in May and Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-22428145010448024182015-03-25T15:33:00.001-05:002015-09-09T11:53:10.616-05:00GIST Day Of Learning (GDOL) Chicago Returns Tuesday, April 14, 2015 to Northwestern University Medical Research Building
GDOL Chicago will be held this year in the Baldwin Auditorium of the Robert H. Lurie Medical Research Building at 303 E. Superior St. in the Northwestern University medical campus area on the evening of Tuesday, April 14 from 5:00 pm to 8:30 pm. Casual dinner and refreshments will be provided. Discounted parking ($6 coupon) will be available. The program includes Lurie Cancer Center MDs Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-26265863779137591572015-01-09T12:15:00.001-06:002015-01-09T12:15:24.275-06:00Meeting Sunday, January 25 at Wellness House in Hinsdale
The next meeting of the GISTChicago Chapter of the Life Raft Group will be Sunday, January 25, 2015 at 12:30 pm at Wellness House in Hinsdale. Wellness House is located at 131 N. County Line Road Hinsdale, IL 60521. The phone there is: (630) 323-5150. Click here for directions.
All Chicago Area GIST patients are invited to attend. Please RSVP to tjhughes43(at)comcast(dot)net.
TheJim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-25499921367569642862014-06-18T17:45:00.001-05:002014-07-02T15:43:43.888-05:00
Sunday, July 13th, 2014
You're Invited
1st Annual GIST Awareness Day
LOCATION
Peggy Notebaert Nature Museum, 2430 N Cannon Dr., Chicago, IL 60614
ACTIVITIES
Morning - Informational session for patients and caregivers*: 9 AM-1 PM
*Breakfast and lunch will be provided
Afternoon - GIST Awareness Day Festival: 1 PM - 4 PM
HELP US MAKE AND DISPLAY 20,000 ORIGAMI BOATS
AND Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-38444127388199680992014-05-02T16:52:00.001-05:002014-05-02T16:52:45.929-05:00Meeting Sunday, May 4 in Palatine<!--[if gte mso 9]>
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Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-1120209089158927442014-01-21T13:05:00.000-06:002014-01-22T16:09:54.593-06:00Chicago Area Chapter of LRG Meeting - Sunday, January 26, 2014
To heck with the Polar Vortex … the Alberta Clipper … and
the Pineapple Express. It’s time for a
meeting!
The next scheduled meeting of the Chicago Area Chapter of the Life Raft Group
is Sunday, January 26 at 12:30 PM at Wellness Place 1619 West Colonial Parkway
Palatine.
All Chicago area GIST patients
and caregivers are invited to attend…especially those new to GIST.
If Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-68335448830911638562013-08-31T13:56:00.000-05:002013-09-09T16:06:02.289-05:00Meeting at Cook County Hospital, Saturday, November 9The next meeting of the Bill Buchanan Chapter at Cook County will be Saturday, November 9, 2013.
All GIST patients, family and support are invited. The meeting begins at 12:30 pm. Food and refreshments will be available as well as free parking in the visitor lot on Polk Street.
The meetings are held in dining room 2A in the cafeteria. Use the Main Hospial Elevator to the Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-30162470783587540112013-04-12T20:59:00.004-05:002013-04-12T21:06:10.094-05:00GIST Day of Learning Chicago 2013
Cost:
GDOL is Free.
Breakfast and Lunch are provided.
Reduced cost parking is available.
When:
Sunday, May 5, 2013 from 8:00 AM to 5:00 PM
Where:
The Baldwin Auditorium - First FloorThe Robert H Lurie Medical Research Center of Northwestern University.
303 E. Superior St.Chicago, IL 60611
Directions:
NMH Campus map
Entrance at 303 E. Superior. Entrance also at 303Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-33554713821737590202013-04-09T15:36:00.000-05:002013-04-12T11:24:31.949-05:00At AACR 2013 ARIAD Reports that Ponatinib Overcomes Resistant KIT Mutations in GISTThe pharmaceutical company, Ariad, issued a press release today (April 9, 2013) in conjunction with a report delivered at the AACR annual meeting in Washington, DC. Ariad presented pre-clinical data showing that it's drug Iclusig (ponatinib) is active against resistant mutations in GIST.
You can read the full press release here.
Quotes from the press release include:
“These data provide Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-74003186452570024382013-02-25T14:52:00.001-06:002013-02-25T14:52:40.265-06:00FDA approves Stivarga (regorafenib) for GISTThe FDA today announced the approval of Stivarga (regorafenib) for GIST.
“Stivarga is the third drug approved by the FDA to treat
gastrointestinal stromal tumors,” said Richard Pazdur, M.D., director of
the Office of Hematology and Oncology Products in the FDA’s Center for
Drug Evaluation and Research. “It provides an important new treatment
option for patients with GIST in which Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-61127078135906935642013-02-18T17:30:00.001-06:002013-02-18T17:30:16.658-06:00Cancer Rehab Story on NPR TodayNPR ran a story Monday February 18: "Cancer Rehab Begins To Bridge A Gap To Reach Patients". It talks about a Survivor Training And Rehab (STAR) Program for cancer patients. I thought this might be a good resource for Chicago Area GIST patients. The STAR web page lists Alexian Brothers Medical Group in Elk Grove as a provider of the program services. I checked the Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-13769275979162561092013-02-08T14:00:00.000-06:002013-08-20T11:54:55.830-05:00Next Meeting Sunday, September 8 in PalatineThe next meeting of the Chicago Area GIST patients at Wellness Place in Palatine is scheduled for Sunday, September 8 at 12:30 pm.
1619 W Colonial Pkwy, Inverness, IL 60067
Or you can write or call me.
Jim Hughes
847-302-5133
tjhughes43@comcast.netJim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-83618419177975948032013-02-08T12:53:00.003-06:002013-02-08T12:54:26.839-06:00Regorafenib Phase 3 Trial Report AbstractThe abstract of the report on the phase 3 trial of Regorafenib in GIST is now available online at PubMed. The original full report was published in the British journal 'Lancet' on January 26, 2013. You can read the abstract by clicking the link below:
"Efficacy and safety of regorafenib for advanced gastrointestinal stromal tumours after failure of imatinib and sunitinib (GRID)Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-43226819505162324912013-02-05T20:06:00.003-06:002013-02-08T14:56:14.522-06:00News: Antibody hinders resistant GIST in labIf you check this web page on a regular basis you will see news about GIST in the right-hand menu. Yesterday there was news about a press release from Stanford University in California. Life Raft Group Research team members Matt van de Rijn and Jonathan Fletcher have co-authored a paper about a new approach to fighting resistant GIST in the lab. You can read the press release byJim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-90508972772773421872012-10-17T17:02:00.000-05:002013-02-05T20:32:56.350-06:00GIST In The Imatinib Era: An LRG Registry StudyLearn about GIST from a Life Raft Group authored paper with data from our patient registry.
Click on the title in the citation below to get the paper:
Call et al.: Survival of gastrointestinal stromal tumor patients in the imatinib era: life raft group observational registry. BMC Cancer 2012 12:90. doi:10.1186/1471-2407-12-90
Some of the data was originally presented in an oral presentation Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com0tag:blogger.com,1999:blog-3990406301736583440.post-91812435008125074752011-01-17T16:10:00.000-06:002012-10-21T00:34:28.419-05:00Welcome to the new GIST Chicago Website'GIST Chicago' is for Chicago Area GIST patients ....Here patients can:
Get local meeting plans
Get materials and information discussed at local meetings
Use comments to volunteer for local events or to ask general questions.
Users can obtain author access by sending an email to GIST Chicago.
Disclaimer: Information provided here is not to be considered medical advice and should Jim Hugheshttp://www.blogger.com/profile/09798055625253244273noreply@blogger.com